For example, one person may have the boundary of being more private about CF on their first date. While another person may tell their date all about it and be open to questions. In a previous article I wrote about setting boundaries for your health. Boundaries can look different for each person. And they are different for each circumstance. For example, a boundary you would have on a date is not the same boundary you would have for you best friend.

Why Relationships Are Risky for Two People With Cystic Fibrosis

Cohn, J. A. Relation between mutations of the cystic fibrosis gene and idiopathic pancreatitis. J. Med. 339, 653–658 .

The NFL team that inspired me to be courageous on my health journey

Pediatr. 139, 813–820 . Amin, R., Dupuis, A., Aaron, S. D.

The safety profile of Trikafta is based on data from the 510 cystic fibrosis patients in the two trials. The safety profile was generally similar across all subgroups of patients. Serious adverse drug reactions that occurred more frequently in patients receiving Trikafta compared to placebo were rash and influenza events. Restoring cystic fibrosis transmembrane conductance regulator function reduces airway bacteria and inflammation in people with cystic fibrosis and chronic lung infections.

The study relied on self-reported data from more than 300 adults with CF. The Patient Registry Annual Data Report publishes the median predicted survival age of people with CF based on their year of birth. The median predicted survival age is an internationally accepted way to estimate life expectancy. Several factors — including sex, lifestyle choices, any infections, and the type of CF gene mutation that a person has — can influence life expectancy. Cystic fibrosis can affect a person’s quality of life and influence their life expectancy.

Cell 148, 150–163 . References 38 and 39 delineate the importance of two distinct molecular defects conferred by the F508del. CFTR mutation, including their effect of correcting CFTR misfolding to restore CFTR expression.

Lancet 358, 1964–1965 . Dekkers, J. F. Med. 19, 939–945 .

I’ve already spent most of my life taking medication that I don’t want to take on a schedule that I don’t want to keep. The rest of my day needs to be flexible. Antimicrobial resistance occurs when bacteria develop ways to resist antimicrobial medicines, such as antibiotics. These resistant bacteria then grow causing very bad and uncontrolled infections. Jenn has such a way with words, and I love that she doesn’t shy away from talking about the harder aspects of CF. While she and I are in different positions — she being the parent of someone with CF, and me being the person with CF — she is spot on when she talks about it being a team effort.

Short-term effects of chest physiotherapy on pulmonary function in children with cystic fibrosis. Turn to the care team. Your child’s care team can offer practical tips on living with CF, and information about clinical trials, support groups, and new therapies. Rowe, S. M. Care Med. 190, 175–184 .

Thorax 68, A6–A7 . Farrell, P. M. Nutritional benefits of neonatal screening for cystic fibrosis. Wisconsin Cyst.